Women on the Move Against Cancer (WOMAC) is delighted to announce it will support the EHE Rare Cancer Charity (EHERCC) in 2019, with fundraising to begin at its annual party in February.
Epithelioid Haemangioendothelioma (EHE) is a rare form of vascular sarcoma that can occur at any age and is often aggressive in children and young adults. The disease can affect either gender, but it predominantly presents in females. A ratio of five women to every man is quoted, but Dr Silvia Stachiotti, a clinician based in Italy and experienced with EHE, believes the ratio is much higher, maybe as high as 20:1. There is also a clinical signal that the onset of EHE may be connected to puberty and pregnancy in women, a particularly distressing aspect of the disease that suggests there may be some form of hormonal trigger involved.
To treat rare cancers such as EHE, medical professionals need to understand why they occur, how they spread within the body, what biological processes are involved, and what factors dictate their location and severity.
That’s why the EHERCC is fighting back and funding research into finding a cure for EHE cancer, while providing invaluable support and information to patients and families whose lives are affected by this devastating disease. Its three main objectives are to support patients wherever they are in the world; to promote, fund and direct research into EHE; and to act as advocates for greater awareness of, and care for, EHE.
Claire-Anne Escoffey tragically lost her 18-year-old daughter Isabelle to EHE in February this year and hopes to attend WOMAC’s fundraising party in her memory.
“We were so deeply touched to hear that WOMAC has chosen to support the EHERCC in 2019, including their next fundraising event in February,” said Claire-Anne.
“Isabelle passed away on 7 February 2018 so it will be an emotional time but a beautiful tribute, raising much-needed funds to help research into treating and finding a cure for this awful disease. As a ‘rare’ cancer, the charity receives no funding from the main cancer charities.
“It took Great Ormond Street Hospital two years and two biopsies to diagnose Isabelle’s EHE, so my personal feeling is that it may not be as ‘rare’ as we think. We have so much to learn about EHE.”
Claire-Anne added: “It means a huge amount to us when people and organisations like WOMAC contact us on hearing about Isabelle’s story and use her legacy to help raise awareness of EHE and funds for further research. We are so grateful to WOMAC for their support of EHERCC in memory of Isabelle.”
Georgia Fox, Chair of the WOMAC committee, explained: “Supporting charities such as the EHERCC is exactly what WOMAC set out to do. It’s heart-breaking stories such as Isabelle’s that touch our hearts and inspire us to do as much as we possibly can to support as many cancer patients as we can and to help fund research to find a cure. The fact that EHE is predominantly a female cancer, and the fact that is often at its most aggressive in children and young adults, made us even keener to assist.”
Details of WOMAC’s annual fundraising party in 2019 and how to attend will be announced later this autumn.
About EHE Rare Cancer Charity
Epithelioid Haemangioendothelioma (EHE) is a very rare form of vascular sarcoma. The EHE Race Cancer Charity (EHERCC) gathers vital data from its worldwide membership of EHE patients, which is invaluable to the medical and research scientists who are working to understand and treat this rare cancer. The EHERCC’s key objectives are to support patients wherever they are in the world; to promote, fund and direct research into EHE; and to act as advocates for greater awareness of, and care for, EHE.
Women on the Move Against Cancer is a group of female volunteers working in the automotive industry. It was established in 1979 and aims to continue the fight against cancer by supporting a variety of projects, searching for more effective treatments or improving the quality of life for cancer sufferers, their families and carers.